hi fam!
it's been a while. kinda because i was lazy and kinda because losing 99.25% of your hair can be a little jarring. since i last posted, i lost all of my hair. all. of. it. eyebrows. eyelashes. nose hair. leg hair (yay!). arm hair... basically every hair except for the hair on one toe and one knuckle. no joke.
the timeline of my hair loss looked like this:
november: a few big bald spots
december: a lot more big bald spots
january: started wearing a wig
february: eyebrows started to go
march: eyelashes started to go
april: eyebrows gone
june: eyelashes gone
it was a solid year with absolutely no regrowth (other than the 8 week stint on an immunosuppressant - but that's another blog post). i've got some tiny patches coming back on my head, a bunch of eyebrow hairs and a few eyelashes. not enough to really toot my horn about, but enough to make me feel good that at least my body can still produce hair. baby steps, am i right?
what's changed? who heckin' knows. i might have slightly less stress. but i still eat my weight in sugar everyday (and love it). i exercise sometimes. no special vitamins or spiked hammers. just livin' my best life and trying to not sweat the bald stuff.
when i saw my doctor / dermatologist, they confirmed that because i'd lost all of my hair (lashes and all) i now have alopecia universalis (i used to have alopecia areata). my doctor also mentioned that going from one type of alopecia to another is basically unheard of.
so, here we are! still on this fun adventure of hair lost (and found). hopefully my menagerie of hair sprouts continue to grow and bring some friends with them!
Showing posts with label alopecia areata regrowth. Show all posts
Showing posts with label alopecia areata regrowth. Show all posts
Sunday, January 6, 2019
Thursday, February 9, 2017
hair today, gone tomorrow (OMG how have I not used that title before).
This year, my hair went on an exciting journey... down my bathtub drain / into my garbage can. I lost almost all the hair on my head in a 6 week period. In my 18 years of bald spots, I've never experienced anything like it. I'd wash my hair and it would come out in chunks. I could've made a sweater from all of my hair that had gathered on my sweaters.
I finally decided to shave it a couple of weeks ago. It was a tough decision, but I (almost) immediately felt better about how I looked. And apparently I've got a great shaped noggin. Let me show you.
It's weird (and kind of amazing) having a shaved head. Washing my scalp is a breeze! And styling my hairs is an absolute dream. AND (perhaps most importantly) no more hairballs in my bathtub. See! There's (almost always) always a bright side.
I finally decided to shave it a couple of weeks ago. It was a tough decision, but I (almost) immediately felt better about how I looked. And apparently I've got a great shaped noggin. Let me show you.
It's weird (and kind of amazing) having a shaved head. Washing my scalp is a breeze! And styling my hairs is an absolute dream. AND (perhaps most importantly) no more hairballs in my bathtub. See! There's (almost always) always a bright side.
Sunday, October 4, 2015
the itchiest (and most successful?) alopecia areata treatment i've found: squaric acid dibutylester
in may, my dermatologist and i set out on a fun new alopecia areata adventure where we made my body allergic to a compound called squaric acid dibutylester (which from here forward i'll just refer to as squaric acid because dibutylester is a ridiculous word to type more than once) by applying a concentrated solution of it to my arm. (see amazing bicep photo below). this photo does not do justice to how itchy this got. like, the itchiest itch i've ever itched. it took about a week for the reaction to peak and eventually the reaction had to be stopped with cortisone (yay, steroids!).
next step was a less concentrated formula that i applied to my bald spots once a week. on a scale of 1 to "the itchiest itch i've ever itched", the formula that i apply on my scalp is probably a 6 or 7. the sensation lasts for about 36 hours, then it gets flaky, then at day 7 it looks like a "normal" bald spot again and it's time to reapply. i'm so happy to say that it's all worth it because typically after a few weeks of applying, i can start to see hair growth. (see amazing scalp photo below).
the idea behind squaric acid is that when applied to a bald spot, the allergic reaction earns the attention of your immune system as something to fight, rather than fighting with innocent hair follicles. i believe this treatment is also done with poison ivy, the downside being that poison ivy is a substance that you could run into in nature, whereas squaric acid is man-made and there's very little risk of running into it on a hike and having an over the top allergic reaction. does that make sense? i'm not a doctor.
i'm still applying the squaric acid to my menagerie of bald spots every 7 days, and happily scratching away, eagerly waiting to meet my new hair sprouts.
yay, chemistry!
next step was a less concentrated formula that i applied to my bald spots once a week. on a scale of 1 to "the itchiest itch i've ever itched", the formula that i apply on my scalp is probably a 6 or 7. the sensation lasts for about 36 hours, then it gets flaky, then at day 7 it looks like a "normal" bald spot again and it's time to reapply. i'm so happy to say that it's all worth it because typically after a few weeks of applying, i can start to see hair growth. (see amazing scalp photo below).
the idea behind squaric acid is that when applied to a bald spot, the allergic reaction earns the attention of your immune system as something to fight, rather than fighting with innocent hair follicles. i believe this treatment is also done with poison ivy, the downside being that poison ivy is a substance that you could run into in nature, whereas squaric acid is man-made and there's very little risk of running into it on a hike and having an over the top allergic reaction. does that make sense? i'm not a doctor.
i'm still applying the squaric acid to my menagerie of bald spots every 7 days, and happily scratching away, eagerly waiting to meet my new hair sprouts.
yay, chemistry!
Saturday, December 6, 2014
an alopecia update, because (some of) you asked for it.
hi friends!
remember almost 8 months ago when i stopped wearing my wig? welp, i'm happy to announce that i'm still wig-free, although not bald spot free. i've got a few spots on the side of my head and one that's starting on the top of my head (that's probably noticeable to anyone taller than me, which is a lot of people).
i saw my TCM doctor about a month ago because i was getting nervous about my new spots. he reminded me that alopecia areata has no set path and unfortunately, there's noway to anticipate what its next, sneaky move will be. he told me to keep using that awesome 7 star hammer (LOVE that thing!) and keep taking the herbs he prescribed for me. i told him i'd been thinking about getting a cortisone injection in the spot on the top of my head, and he fully supported it.
so now, for the second time in my life with alopecia areata (15 years now) i've gotten a cortisone injection. the first experience (years ago) was not great. this experience, was much better. i went to my specialist (who's a dermatologist, i just call him a specialist because it sounds so special)... he also reminded me that alopecia areata is unpredictable, but that i'd never lose all my hair. he used the tiniest needles and basically circled the entire spot on the top of my head that's losing hair. it barely hurt (compared to the first time which hurt a lot). i'll go back in a few weeks for a follow up.
here are some things that had changed in my life, that might be responsible for the new bald spots:
i bought a house (a house that needed a lot of work, money and paint) so i might have been a tiny bit stressed. i started slacking on the treatment shampoo that a lovely woman in L.A. sent me (i have to sit with it on my head under a shower cap for 30 minutes and sometimes 30 minutes feels like a long time). i was also slacking with my vitamins (iron, biotin, magnesium bisglycinate). and was just generally busy, and didn't feel like i had a whole lot of time for myself (because any free time i did have, went into painting my house). i hate the idea of blaming alopecia areata on stress, but maybe it is a cause of it.
so i'm back to using my treatment shampoo, taking my vitamins and have stopped painting my house (thanks to a pinched nerve).
i've decided to not document this hair loss with photos, because i'm trying to ignore my bald spots as much as possible (which is a very tough thing to do). in general, i'm actually in pretty good spirits about it and am really just appreciating being able to get up and not have to put on a wig.
thanks to everyone who have sent emails sharing their stories, offering support and asking questions. i've never met anyone in real life with alopecia areata, but i sure have met a lot of amazing people with alopecia areata on the internet.
remember almost 8 months ago when i stopped wearing my wig? welp, i'm happy to announce that i'm still wig-free, although not bald spot free. i've got a few spots on the side of my head and one that's starting on the top of my head (that's probably noticeable to anyone taller than me, which is a lot of people).
i saw my TCM doctor about a month ago because i was getting nervous about my new spots. he reminded me that alopecia areata has no set path and unfortunately, there's noway to anticipate what its next, sneaky move will be. he told me to keep using that awesome 7 star hammer (LOVE that thing!) and keep taking the herbs he prescribed for me. i told him i'd been thinking about getting a cortisone injection in the spot on the top of my head, and he fully supported it.
so now, for the second time in my life with alopecia areata (15 years now) i've gotten a cortisone injection. the first experience (years ago) was not great. this experience, was much better. i went to my specialist (who's a dermatologist, i just call him a specialist because it sounds so special)... he also reminded me that alopecia areata is unpredictable, but that i'd never lose all my hair. he used the tiniest needles and basically circled the entire spot on the top of my head that's losing hair. it barely hurt (compared to the first time which hurt a lot). i'll go back in a few weeks for a follow up.
here are some things that had changed in my life, that might be responsible for the new bald spots:
i bought a house (a house that needed a lot of work, money and paint) so i might have been a tiny bit stressed. i started slacking on the treatment shampoo that a lovely woman in L.A. sent me (i have to sit with it on my head under a shower cap for 30 minutes and sometimes 30 minutes feels like a long time). i was also slacking with my vitamins (iron, biotin, magnesium bisglycinate). and was just generally busy, and didn't feel like i had a whole lot of time for myself (because any free time i did have, went into painting my house). i hate the idea of blaming alopecia areata on stress, but maybe it is a cause of it.
so i'm back to using my treatment shampoo, taking my vitamins and have stopped painting my house (thanks to a pinched nerve).
i've decided to not document this hair loss with photos, because i'm trying to ignore my bald spots as much as possible (which is a very tough thing to do). in general, i'm actually in pretty good spirits about it and am really just appreciating being able to get up and not have to put on a wig.
thanks to everyone who have sent emails sharing their stories, offering support and asking questions. i've never met anyone in real life with alopecia areata, but i sure have met a lot of amazing people with alopecia areata on the internet.
where the white hair ends.
welp, over a year ago when my bald spots started filling in with the whitest white hair i've ever seen in my life, 2% of me was disappointed, the rest of me was just happy to have hair that wanted to exist on my head (yay hair!). as the months went on and more of my hair started growing, i realized i had less white hair... was it that i had more dark hair growing in and it made the white hair less noticeable, or was it that the white hair started growing in brown? nobody knew. not that i asked many people. UNTIL ONE DAY i found this single hair, holding on for dear life to the tile in my shower.
(note: it's hard to take a photo of a single strand of hair. just ask my cousin whom i forced to help me.)
the darker portion is the root end. magic! science! hair! there's that mystery solved.
for the most part, my bald spots do start filling in with white hair, and eventually their darker pigmented friends join the hair growth party. i've got a few chunks of white hair that i actually think look kind of awesome. my hair dresser wanted to colour them, but my TCM doctor insists that my hair couldn't take it. so here i am, wig-free (yay!) with a few bald spots (no biggie) and some streaks of the whitest white hair, that make me look a few years older, but that's cool. i honestly don't mind.
thanks, hair! i'm happy to have you back.
(note: it's hard to take a photo of a single strand of hair. just ask my cousin whom i forced to help me.)
the darker portion is the root end. magic! science! hair! there's that mystery solved.
for the most part, my bald spots do start filling in with white hair, and eventually their darker pigmented friends join the hair growth party. i've got a few chunks of white hair that i actually think look kind of awesome. my hair dresser wanted to colour them, but my TCM doctor insists that my hair couldn't take it. so here i am, wig-free (yay!) with a few bald spots (no biggie) and some streaks of the whitest white hair, that make me look a few years older, but that's cool. i honestly don't mind.
thanks, hair! i'm happy to have you back.
Saturday, April 26, 2014
lost and found (or: the case of the amazing disappearing and reappearing hair).
welp, it's with an immense amount of pleasure that i post an updated photo of my hair. last night, for the first time in over 15 months, i went out without a wig / hat / scarf / other random object covering my head. it felt pretty amazing (and a little scary) but mostly pretty amazing. it's not a perfect head of hair, but it's 100% mine and i'm not taking that for granted.
i wish i had a better idea of why my hair has decided to come back, but my hair refuses to tell me. i've been really good about taking the herbs my tcm doctor gave me (and using that damn sugar plum fairy hammer - name changed to protect its identity). i definitely think that could be part of it. i've also been using shampoo that a lovely woman in l.a. (who also has alopecia areata) kindly sent me, which might be helping too. but ultimately i think these results are simply due to the fact that auto-immune system disorders are fucking wack, have a mind of their own and are on their own path of destruction (and regeneration). there haven't been any major changes to my diet, exercise or sleep habits. i think it's just pure luck, and nature running its course. whatever it is, as long as my hair is growing, i'll take it!
i do have some small-ish new spots, but nothing compared to the craziness of the photo from june of last year.
shout out to my amazing friends, family and strangers from the internet for making this whole sack of shit experience much easier and a lot less lonely. you've helped me regain my confidence, learn how to put on a wig like a pro, chill the fuck out and get over myself. this blog has been super helpful for me to track my progress, but it's also been great as it's allowed me to interact with people in situations similar to mine. strength in hairloss numbers!
i wish i had a better idea of why my hair has decided to come back, but my hair refuses to tell me. i've been really good about taking the herbs my tcm doctor gave me (and using that damn sugar plum fairy hammer - name changed to protect its identity). i definitely think that could be part of it. i've also been using shampoo that a lovely woman in l.a. (who also has alopecia areata) kindly sent me, which might be helping too. but ultimately i think these results are simply due to the fact that auto-immune system disorders are fucking wack, have a mind of their own and are on their own path of destruction (and regeneration). there haven't been any major changes to my diet, exercise or sleep habits. i think it's just pure luck, and nature running its course. whatever it is, as long as my hair is growing, i'll take it!
i do have some small-ish new spots, but nothing compared to the craziness of the photo from june of last year.
shout out to my amazing friends, family and strangers from the internet for making this whole sack of shit experience much easier and a lot less lonely. you've helped me regain my confidence, learn how to put on a wig like a pro, chill the fuck out and get over myself. this blog has been super helpful for me to track my progress, but it's also been great as it's allowed me to interact with people in situations similar to mine. strength in hairloss numbers!
Monday, January 13, 2014
splitting hairs.
alright people, it's the moment most of you haven't been waiting for. see attached photo for how much ass my hair is kicking. i do not care what colour it is. i do not care what texture it is. all i care is that it is my hair growing out of my scalp and it's almost passable as a head of hair.
what have i done to earn / achieve this glorious hair? i'm not sure. this might sound horribly cynical, but i don't think i can attribute it to anything i've done. i think this is just time passing and an icky disorder running its course.
i'm torn as to whether or not i should attach the less celebratory photos of how much hair i've lost on the right side of my head. i think for today, i'll leave it at this positive post of recovery.
3 cheers for hair!
what have i done to earn / achieve this glorious hair? i'm not sure. this might sound horribly cynical, but i don't think i can attribute it to anything i've done. i think this is just time passing and an icky disorder running its course.
i'm torn as to whether or not i should attach the less celebratory photos of how much hair i've lost on the right side of my head. i think for today, i'll leave it at this positive post of recovery.
3 cheers for hair!
Sunday, September 8, 2013
baby steps (and baby hairs).
i am the proud owner of a lot of new hair sprouts (and a few new bald spots - but let's not focus on those). my hair is coming in white. not blonde. not grey. white. although there's also some darker hair coming in. i hate to sound desperate, but i'll take any hair i get. check out this photo of my hair in april, june and then yesterday. i think i'm finally making progress in the right (and less bald) direction.
here's a list of what i'm doin' that may (or may not) be helping:
TCM:
i'm still seeing my doctor in traditional chinese medicine. i think he's amazing. every time i see him, he does accupuncture, as well as giving me chinese herbs to take twice a day. if you're in or near toronto, i'd highly recommend him. email me if you want his deets.
supplements:
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
most importantly: stay positive. (written by someone who sometimes sorta excels at it, and sometimes definitely doesn't).
here's a list of what i'm doin' that may (or may not) be helping:
TCM:
i'm still seeing my doctor in traditional chinese medicine. i think he's amazing. every time i see him, he does accupuncture, as well as giving me chinese herbs to take twice a day. if you're in or near toronto, i'd highly recommend him. email me if you want his deets.
supplements:
- silicea, 1 tbsp / day
- iron, 2 / day (thorne, ferrasorb - this is the greatest iron supplement i've ever taken. evar.)
- vitamin c, 2 / day (natural factors, 1000mg)
- biotin, 1 / day (natural factors, biotin)
- vitamin d, 4 drops / day (genestra, d-mulsion)
- magnesium, 3 before bed (canprev, magnesium bis-glycinate)
- giovanni, tea tree triple treat shampoo
- kiss my face, whenever conditioner (i put this on my scalp, but use an intense conditioner for my ends)
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
most importantly: stay positive. (written by someone who sometimes sorta excels at it, and sometimes definitely doesn't).
Wednesday, May 8, 2013
wiggin' out. a girl with alopecia's guide to buying a wig.
know what's better than having a natural head of your own healthy hair? having a head of healthy hair that was created from the hair of strangers. well, maybe it's not better than you own hair, but it's a pretty great back up plan.
like many things in life, the experience of buying a wig will be whatever you make of it. i tried really (really) hard to look at it like the funnest, most exciting adventure i'd ever been on. it definitely wasn't, but it also wasn't the worst thing that's ever happened to me.
for me, the biggest struggle was deciding whether or not i even really needed a wig. even though i'd put down a deposit and booked an appointment for my wig to be cut, i still wasn't sure it was the right decision. i didn't actually know it was the right decision until i wore it out of the wig shop and in public for the first time. it was the best i'd felt about myself in months (and months). i definitely made the right choice.
here's what i've learned about wigs:
shop around. i'd recommend making an appointment and going for a consultation. for some reason, almost all wig websites are terrifying. don't be scared. if you're in or near toronto, here are links to the places i checked out:
if you want long hair, then european human hair is probably your best bet. human hair is much higher maintenance, but it looks (and behaves) like... human hair. it's also really expensive. my wig was $2800+tax (eek!). it was about $2800 more than i wanted to pay for a wig (or for anything, really). i'm so lucky i was in a position to even consider such a thing, and it's been worth every penny. maybe people are just being nice, but i get lots of compliments on it. people who didn't know about my struggle with alopecia just thought i'd had my hair coloured.
if $2800 is out of your budget, don't lose hope. if you have benefits, you might have coverage through work - check with your benefits plan. in canada, the government provides a tax credit for medical wigs (you just need a note from your doctor). click here to find out more. gabi's wigs had a wide variety of wigs (human and synthetic) for a range of prices. mine was one of the more expensive ones. the shorter the hair, the less expensive it will be.
bring a friend (or an entire entourage). i tried my best to not cry during my appointments, but unfortunately for everyone around me, i'm really good at crying in public. i have no shame. friends are good for moral support - unless you have crappy friends - in which case email me and i'll go with you. i'm seriarse. i'd also recommend bringing a friend (and reference photos) when it comes time to have your wig cut and coloured. the thing with wigs is that they don't grow. that's a pretty permanent (and kind of stressful) hair cut. i loved the colour of mine, so i just needed some layers and fringe added. the first cut was included in the cost of the wig, and they did a stellar job.
caring for a human hair wig, is a lot like caring for your own hair... if you were able to just remove your scalp. it's kind of like having a giant expensive doll. i brush my wig everyday. put rollers in for body. straighten it when it's actin' crazy. it's kind of awesome. the great thing about synthetic wigs is that typically they're all wash and wear, but you can't use heat to style them. human hair gives you a bit more flexibility in that sense.
as for my real hair, it's still falling out in chunks (but some of it is regrowing). i'm still waiting patiently for the growing in to catch up with the falling out.
like many things in life, the experience of buying a wig will be whatever you make of it. i tried really (really) hard to look at it like the funnest, most exciting adventure i'd ever been on. it definitely wasn't, but it also wasn't the worst thing that's ever happened to me.
for me, the biggest struggle was deciding whether or not i even really needed a wig. even though i'd put down a deposit and booked an appointment for my wig to be cut, i still wasn't sure it was the right decision. i didn't actually know it was the right decision until i wore it out of the wig shop and in public for the first time. it was the best i'd felt about myself in months (and months). i definitely made the right choice.
here's what i've learned about wigs:
shop around. i'd recommend making an appointment and going for a consultation. for some reason, almost all wig websites are terrifying. don't be scared. if you're in or near toronto, here are links to the places i checked out:
- gabi's wigs. this is where mine came from. they're great and have a lot of options.
- hair & wigs.
- continental hair.
if you want long hair, then european human hair is probably your best bet. human hair is much higher maintenance, but it looks (and behaves) like... human hair. it's also really expensive. my wig was $2800+tax (eek!). it was about $2800 more than i wanted to pay for a wig (or for anything, really). i'm so lucky i was in a position to even consider such a thing, and it's been worth every penny. maybe people are just being nice, but i get lots of compliments on it. people who didn't know about my struggle with alopecia just thought i'd had my hair coloured.
if $2800 is out of your budget, don't lose hope. if you have benefits, you might have coverage through work - check with your benefits plan. in canada, the government provides a tax credit for medical wigs (you just need a note from your doctor). click here to find out more. gabi's wigs had a wide variety of wigs (human and synthetic) for a range of prices. mine was one of the more expensive ones. the shorter the hair, the less expensive it will be.
bring a friend (or an entire entourage). i tried my best to not cry during my appointments, but unfortunately for everyone around me, i'm really good at crying in public. i have no shame. friends are good for moral support - unless you have crappy friends - in which case email me and i'll go with you. i'm seriarse. i'd also recommend bringing a friend (and reference photos) when it comes time to have your wig cut and coloured. the thing with wigs is that they don't grow. that's a pretty permanent (and kind of stressful) hair cut. i loved the colour of mine, so i just needed some layers and fringe added. the first cut was included in the cost of the wig, and they did a stellar job.
caring for a human hair wig, is a lot like caring for your own hair... if you were able to just remove your scalp. it's kind of like having a giant expensive doll. i brush my wig everyday. put rollers in for body. straighten it when it's actin' crazy. it's kind of awesome. the great thing about synthetic wigs is that typically they're all wash and wear, but you can't use heat to style them. human hair gives you a bit more flexibility in that sense.
as for my real hair, it's still falling out in chunks (but some of it is regrowing). i'm still waiting patiently for the growing in to catch up with the falling out.
Sunday, April 14, 2013
the state of the nation (on the top of my head).
sadly for me (and my hair follicles) my scalp is still rejecting my hair at a feverish rate. i'm continuing with all my vitamins + minerals, and applying the anti-inflammatory cream every night (ish). the cream definitely seems to help the hair grow back faster. click here for the "recipe" for the cream.
in other news, i bought a wig this week. bye bye, combover! i went with human hair (it's the hair of four different women, somewhere in europe - thanks ladies!). it'll be nice to be able to go out with my hair down, sans combover and sans headband... even if it's not my own hair. it still needs to be cut, but will be ready in a week. i went to a couple different wig shops, but ended up buying one from gabi's wigs. gabi is amazing (and so is my friend who came with me and watched me try on dozens of wigs and cry a little bit). i got a wig that's pretty close to my natural hair colour, and a smidge longer than my current length. it will be the healthiest head of hair i've ever had. maybe it will inspire my hair to do some growing.
in other news, i bought a wig this week. bye bye, combover! i went with human hair (it's the hair of four different women, somewhere in europe - thanks ladies!). it'll be nice to be able to go out with my hair down, sans combover and sans headband... even if it's not my own hair. it still needs to be cut, but will be ready in a week. i went to a couple different wig shops, but ended up buying one from gabi's wigs. gabi is amazing (and so is my friend who came with me and watched me try on dozens of wigs and cry a little bit). i got a wig that's pretty close to my natural hair colour, and a smidge longer than my current length. it will be the healthiest head of hair i've ever had. maybe it will inspire my hair to do some growing.
Friday, February 22, 2013
eliminating the elimination diet.
four long, hungry weeks ago i set out on a mission to eliminate all of my favourite foods from my daily repertoire in order to determine which (if any) of them make my body cranky. this mission is called the elimination (or anti-inflammatory) diet, and i'm happy to say, i survived.
last week i started re-introducing food. so far i've added dairy, eggs, sugar and corn without any issue.
for the 3 weeks that i was on the strict part of the diet, i was pretty lethargic (which was probably a nice change for the people around me who find me annoyingly hyper). as soon as i re-introduced dairy last week, my energy levels were back, and i've been feeling great since. i still have to re-introduce a few big ones (soy, nightshades, gluten).
in terms of my hair, lots of spots are growing in, but i'm still losing a lot of hair. the patches on the top of my head have lovely new sprouts, but the areas around them are now falling out. i've been channeling my inner hippie and wearing scarves on my head everyday. i've included a couple pics that i took in my glamourous work bathroom. the scarves have been amazing for covering the spots on the top of my head. and it's a nice break from wearing hats everyday. all of my silk scarves came from my mom (thanks, mom!) or ebay.
in other news, later today i've got an appointment for a wig consultation. i've really struggled with this decision. part of me feels like i'm giving up by getting a wig / partial, the other part of me is tired of wearing hats / scarves and worrying about spots showing on a daily basis. that being said, i'm pretty excited for my appointment and finding out more about what my options are. i just might come home with a platinum blonde wig that goes to my waist. but probably not. blog post to follow...
last week i started re-introducing food. so far i've added dairy, eggs, sugar and corn without any issue.
for the 3 weeks that i was on the strict part of the diet, i was pretty lethargic (which was probably a nice change for the people around me who find me annoyingly hyper). as soon as i re-introduced dairy last week, my energy levels were back, and i've been feeling great since. i still have to re-introduce a few big ones (soy, nightshades, gluten).
in terms of my hair, lots of spots are growing in, but i'm still losing a lot of hair. the patches on the top of my head have lovely new sprouts, but the areas around them are now falling out. i've been channeling my inner hippie and wearing scarves on my head everyday. i've included a couple pics that i took in my glamourous work bathroom. the scarves have been amazing for covering the spots on the top of my head. and it's a nice break from wearing hats everyday. all of my silk scarves came from my mom (thanks, mom!) or ebay.
in other news, later today i've got an appointment for a wig consultation. i've really struggled with this decision. part of me feels like i'm giving up by getting a wig / partial, the other part of me is tired of wearing hats / scarves and worrying about spots showing on a daily basis. that being said, i'm pretty excited for my appointment and finding out more about what my options are. i just might come home with a platinum blonde wig that goes to my waist. but probably not. blog post to follow...
Sunday, February 10, 2013
good news / bad news.
good news! a lot of my bald spots are regrowing (and most of them are growing in brown, not white!).
bad news! the parts without hair are increasing, and it's falling out in freaky deaky chunks, which is pretty freaky deaky.
good news! i'm almost at the re-introduction portion of the elimination / anti-inflammatory diet. which is great, because i really miss cheese, gin and red meat. and i'm hungry. all. the. time.
the diet itself will be over in a few weeks, which works out perfectly with a trip i just booked to hawaii, which works out perfectly with my latest treatment decision. as soon as this diet's over, i'm going to spend more time focusing on taking care of myself, eating well and being as awesome as i can be everyday... and spend less time focusing on my alopecia. applying cream to my bald spots twice a day might be helping my hair regrow, but on an emotional level, i don't think it's doing me any favours. i get to see progress (which is great) but it also forces me to see more hair loss, and that aspect of it is disturbing for me. i'm definitely not at the point where i need a wig, but it's continually getting tougher to keep all of the spots covered on the top of my head. on the suggestion of a friend i've bought a bunch of silk scarves to wear as headbands. constantly fussing with my hair to keep my combover where it should be, is (not surprisingly) also not great for my ego.
anyway, it could be worse. at least i'm surrounded by great family and friends who don't give a shart how much hair i do or don't have.
Monday, February 4, 2013
gluten for punishment or: how i learned to stop worrying & love the elimination diet.
in my humble opinion, i'm kickin' arse on the elimination / anti-inflammatory / anti-everything i love eating diet. i think my mood has been pretty good (my friends and co-workers might say otherwise), my energy levels are a smidge lower than usual, but i feel pretty great. not great enough to do this for the rest of my life though. AND a bunch of my spots are growing in. and they're even growing in with pigment! i've also noticed that my bald spots are a lot less red. i'm still drinking the 300 year old witch doctor tea that i mentioned here, but one of my wonderful co-workers (who i like to refer to as my work-naturopath, cause he's pretty well researched on this stuff) put it in capsules for me. no more horrid taste twice a day, and no more nausea. amazing. so i'm feeling super duper positive. i bought a couple new hats to get me through the days where my bald spots aren't cooperating and i can't keep them hidden. i showed them who's boss.
in my last post, i wrote a bit about the diet, but here's a more thorough breakdown:
no:
yes:
and i'm still applying this cream:
--
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
--
the diet takes about 5 weeks in total. i think i'll make it.
in my last post, i wrote a bit about the diet, but here's a more thorough breakdown:
no:
- gluten
- eggs
- dairy
- soy
- sugar
- nightshades (what a dumb word for tomatos, peppers, potatos and eggplant)
- mushrooms
- corn (i. love. popcorn.)
- vinegar (this means no olives. which i also love.)
- strawberries, bananas, citrus fruit
- caffeine
yes:
- chicken and fish
- a shit ton of vegetables
- quinoa and brown rice
- olive oil
- raw almonds, brazil nuts, sunflower seeds...
- blueberries, apples, mangos
- almond milk
- tons of water
and i'm still applying this cream:
--
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
--
the diet takes about 5 weeks in total. i think i'll make it.
Wednesday, January 23, 2013
taking the treat out of treatment. my new alopecia areata treatment plan.
my wonderful naturopath (seriously, she's amazing) has suggested i try many not so wonderful things since since she started treating my alopecia last year. examples of not so wonderful things include: rubbing onion juice on my head, applying an oil concoction to my head every night for 3 months, drinking horrible tinctures, not eating sugar, and so on. when she suggested i try an anti-inflammatory diet that involved cutting out awesome things like; gluten, dairy, soy, eggs and sugar, my initial response was no. i really like sugar. when she said it would only be for 3 weeks, it seemed bearable.
here's the new plan; i'm keeping up with all the stuff listed in this blog post here,
http://thealopeciaproject.blogspot.ca/2013/01/taking-stand-for-my-strands-my-current.html
and as of friday, for the next three weeks i'm officially gluten, dairy, soy, egg and sugar free. i can eat lots of veggies, chicken and limited fruit. i also have to continue drinking the blood cleanse tea that was made for me by my 300 year old herbalist. i describe the tea in the link above as well. my naturopath also recommended applying an anti-inflammatory cream twice a day instead of cortisone. deets listed below.
i know people eat healthy everyday. good for them! i'm not one of those people. i eat relatively healthy, but i definitely eat gluten + dairy + soy + eggs + sugar pretty much daily. it'll be tough, and will mean missing out on goodies at a baby shower, a couple of concerts, a work event and a retirement party, but hopefully it'll be worth it. i've spent the last couple of days trying to get myself and my fridge ready for it. i've also eaten a bit more candy than usual, just in case it doesn't taste as good in 3 weeks when the diet is over.
--
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
--
i'll keep y'all posted on how it goes.
here's the new plan; i'm keeping up with all the stuff listed in this blog post here,
http://thealopeciaproject.blogspot.ca/2013/01/taking-stand-for-my-strands-my-current.html
and as of friday, for the next three weeks i'm officially gluten, dairy, soy, egg and sugar free. i can eat lots of veggies, chicken and limited fruit. i also have to continue drinking the blood cleanse tea that was made for me by my 300 year old herbalist. i describe the tea in the link above as well. my naturopath also recommended applying an anti-inflammatory cream twice a day instead of cortisone. deets listed below.
i know people eat healthy everyday. good for them! i'm not one of those people. i eat relatively healthy, but i definitely eat gluten + dairy + soy + eggs + sugar pretty much daily. it'll be tough, and will mean missing out on goodies at a baby shower, a couple of concerts, a work event and a retirement party, but hopefully it'll be worth it. i've spent the last couple of days trying to get myself and my fridge ready for it. i've also eaten a bit more candy than usual, just in case it doesn't taste as good in 3 weeks when the diet is over.
--
homemade vitamin d anti-inflammatory cream:
combine:
- d-mulsion (genestra) 30ml
http://www.rockwellnutrition.com/D-Mulsion-1000-Liquid-Emulsified-Vitamin-D-by-Genestra.html
- cosmaderm (aor) 30g
http://www.aor.ca/html/products.php?id=47
- aloe vera cream (ferlow botanicals) 60ml
http://www.ferlowbotanicals.com/50.177.0.0.1.0.phtml?hashID=38mu54pdtnhkbn297nfs6310p2
mix products and store in an airtight container. apply 2x / day.
--
i'll keep y'all posted on how it goes.
Sunday, January 20, 2013
meet the bald spots.
in honour of sunday, here's a series of photos of where my bald spots are at. allow me to introduce you to them.
on the left, we've got the two spots i've had for over a year. they're starting to grow in thin and white. in the middle, we've got a series of spots that have been forming over the course of the last few months. the one closest to my forehead (that's growing in white) started first, then the one to the left of it started, then the one closest to the back of my head, and that little canal joining the front and back one just happened over the past couple of weeks. i can also see the front one is spreading to the left. these spots are definitely the most worrisome for me, and toughest to cover. it seems as though they're starting to sprout new hair, but it's quite fine and some of it is white. on the right, the larger spot is a couple of months old, and is growing in white. the spot above it is new.
i have other tiny spots around my head, but as of right now they're nothing of consequence.
i should also note that i haven't coloured my hair in almost 4 years. the brown is my natural colour, and the white regrowth is my new natural colour. it will be interesting to see if they all grow in white, and if they grow in thick, or if my hair is just going to be thinner now. i actually don't mind the white hair. it's definitely better than no hair.
to be honest, it kind of hurts my heart to look at these photos and see how much worse it's gotten over the past year, but it also makes me thankful for how well i'm able to keep things covered.
Monday, January 14, 2013
a macro photo of hair sprouts.
admittedly, this photo is kind of gross. it's a little less gross for me since it's my own head and it means my hair is making a triumphant return. if it makes you gag, sorry. but i tried to warn you.
earlier today i had decided to go off the blood cleanse tea. i've been taking it for almost a month, which is a long time to gag on tea twice a day. but maybe it's working. or maybe my immune system is finally chilling out a bit. either way, i'll take it! welcome aboard, tiny hairs.
earlier today i had decided to go off the blood cleanse tea. i've been taking it for almost a month, which is a long time to gag on tea twice a day. but maybe it's working. or maybe my immune system is finally chilling out a bit. either way, i'll take it! welcome aboard, tiny hairs.
Tuesday, January 8, 2013
a theory (one of many).
as everyone knows, the internet doesn't lie. recently, my bald spots have started growing in white. i found an article online, boldly stating that alopecia doesn't attack white hair. obviously my hair outsmarted alopecia and has begun growing in white as a form of self defense. it's just a theory, and i might not be the internet, but i'm pretty sure i'm right. maybe.
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